AIDY

The problem

5 years of diagnostic wandering

According to the WHO, there are between 6,000 and 8,000 different rare diseases, affecting about 300 million people worldwide — about 3 million in France. 80% are genetic in origin and often affect children. On average, patients wait 5 years and see 8 doctors before getting a diagnosis.

How it works

Photo analysis in seconds

Secure sign-in via the e-CPS portal or by invitation. The user photographs the face from the front and in profile in good lighting; the algorithm compares facial traits against AIDY's database and suggests a list of likely syndromes ranked by probability, with a geolocated referral to expert centers.

GDPR-compliant, hosted on HDS-certified (Hébergeur de Données de Santé) French servers; photos are not stored on AIDY's servers, only on the user's phone.

Medical device pending certification — does not replace a medical diagnosis.

Research

Synthetic faces and privacy

Teaching and diagnosing rare diseases relies on observing characteristic facial traits — but sharing these images creates a dilemma between transmitting knowledge and protecting patients. AIDY is developing a synthetic-face-generation method: from a small number of real diagnosed-patient photos, an AI learns the disease's characteristic traits and then generates hundreds of synthetic face variations — faithfully reproducing the phenotypic traits without reproducing any real patient's identity.

Team

Who's behind AIDY